Mountain New Years 2012

By Skylar | 5th Feb 2012 | Filed under Uncategorized

When I got really sick my gammama promised me a trip to the mountains when I was in the ambulance. She wanted me to get better quick. When I got better I did not forget about that trip. We wanted to go at Thanksgiving but I wasn’t doing very good. So I got to go to the mountains for New Year’s Eve. We saw Christmas lights. We went to a baseball stadium and saw dancing lights. We had a really nice cabin that we stayed in. The name of it was “Just Believe”. And we went for walks to the playground. On New Year’s we got to watch the ball drop. I stayed up past midnight. One day we went to the Apple Barn. We had apple fritters, candy, ice cream, and apple cider. I really loved the fireplace. I liked to lay by the fire and watch tv. We had a great time and lots of fun!!!

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Really really sick

By Skylar | 24th Oct 2011 | Filed under Uncategorized

I got really really sick and it was really scary. I started to get sick on Tuesday. I started to have trouble breathing on Friday and we had to call EMS. We had to use the Cough Assist all the way there or I would stop breathing. I had to be in Intensive Care for 12 days. I had to do respiratory treatments about every 3 hours. They even had to wake me up all night. I got a collapsed lung and it was really bad. I told them to do whatever they had to do so that I would get better and could go home. They gave me some strong medicine and it finally helped get the stuff out of my lungs. When things got really bad I could feel my sister Cassie with me. I was really happy when I got to go home. I hope I don’t ever get sick like that again.

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Great summer!

By Skylar | 3rd Aug 2011 | Filed under Uncategorized

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Disney World Again!

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

Disney AgainMay 2011

Yahoo!!!  I got to got to Disney World two times this summer!  The first time I went was for Jonah’s birthday.  Then I got to go again for the SMA conference.  I really liked it. 

The first time I went to Disney Ms. Jan helped us.  We stayed all day and even got to see the fireworks.  We saw a lot of parades and shows.  We got to meet all the characters.

When I went to Disney World again in June Bethany and Wallette went with me.  It was the first time Bethany ever went to Disney.  I got to ride a bus.  We had a great time.

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Ball at McGraw

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

Tim McGraw3April 2011
I went to my first concert and saw Tim McGraw. My mama surprised me with tickets to the concert. When we got there we met Luke Bryan and he signed my pink cowboy hat. Thanks Mr. Roger! I had seats in the front by the speakers but it was way too loud so we went to the back of the room to watch. A guy came up to us and said he couldn’t enjoy the concert because he was worried that I couldn’t see. He got us new seats right in the middle of the civic center all by ourselves in between Tim Mc Graw’s two stages. Wehn he went from one stage to the other he went right by us. It was awesome! I got really tired and started to leave early. When we got to the lobby he started playing my favorite song “Live Like you are dying” so I had to go right back in. Me, my mama, and my gammama sang and danced and the ushers even danced with us. One of them started crying. Somebody told her about my sister. Country music fans are really really nice. One bought me a t-shirt, one gave me a bracelet, and they all wanted to make sure I had a great time. The security guards and the ushers said the best part of the concert was that I got to go. It was a really awesome great time!

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I can’t but I can

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

May 2011
I have a bad gene in my body so I have a disease called SMA. The disease makes my muscles really weak. I can’t walk but I have a wheelchair. I can’t breathe on my own but I have a bipap. I can’t swallow but I love to taste foods. There are a lot of things I can’t do but there are a lot of things I can do!

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Puppies and Kitties

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

April 2011
One year for Christmas I got a new stuffed puppy. It was really soft and Cassie didn’t get one. And Cassie got a little jealous. When we went to Chicago gammama made Cassie so happy! She surprised Cassie with a soft kitty just like my puppy. When Cassie went to heaven the kitty went with her.

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I saw snow!

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

IMG_2126March 2010
On my thirteenth birthday mama surprised me with a trip to the mountains. I didn’t really think that they were going to do anything special for my birthday. They woke me up early and told me to get ready to go. I was going someplace I have always wanted to go!
I saw snow for the first time. It started snowing when we got to the mountains. We got out at the church and played in the snow. We had so much fun making snow angels, throwing snowballs, building snowmen and playing and playing.
We went to the Biltmore house too. We had a really good cabin too. It had a pool table, a hot tub, a ping pong table, and a arcade game. My Uncle Heath even came for a few days. When he came we had a scavenger hunt and a cake made from cotton candy. I had a great birthday in the mountains!

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Skylar the Cook

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

January 2011
The reason I like to cook is because of my papa and my mama and Paula Deen. My papa really likes to cook. I think that is why I started cooking. When me and Cassie were little we laid on the kitchen counter and helped him cook. He helped us learn to talk by saying onion, seasoning salt, and pepper. I will never forget those times.
And mama like to cook too. Me and mama like to cook together. We like to bake cookies and cupcakes. We like to look at cookbooks for new recipes to cook. We have a lot of fun cooking together.
Paula Deen is the third person that inspires me to cook. She lives in Savannah and she has a cooking show. I have one of her kid cookbooks. I cooked some of her recipes and they were really good. I have three good cooks that makeme love to cook.

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Hi Santa!

By Skylar | 2nd Aug 2011 | Filed under Uncategorized

December 2010
I am very excited about Christmas. I want a pillow pet. I would also like a new computer game and a new movie. Finally I want a new wii game and a book.
My little brother Jonah is very excited about Christmas too. He wants a new car and a new train. He runs around the house yelling “Christmas time” Christmas time” Jonah likes to look at the lights too. I do too.
I have a twin sister Cassie and she loves Christmas too. But we don’t see her because she is in heaven. We can’t see her but we can feel her in our hearts. We really miss her but she sends us signs.

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